Some kids take to water like its second nature. Being a dry suit and bag manufacturer, we know firsthand the pure joy some children get from watersports. Splashing, wading, swimming, playing—it’s all good. But for some kids, playing in the water is an inaccessible dream. Whether it’s an illness or something else holding them back, getting wet is off limits. 19 month old Noah Ervin is one of those water-loving children. According to his mother, Amanda, Noah showed clear signs of his love for the water early on in his life. However, due to his medical condition, he cannot get his chest wet.
Here are Amanda’s own words:
“Noah has a very rare genetic disease called trichohepatoenteric syndrome (THES)…Because of his condition he has a central line (also known as a Broviac line) in his chest that ends at his heart and is used to deliver nutrients and fluids directly to his veins so he can grow. Without this, he couldn’t survive. The problem with the line is that it can’t get wet because of infection risks leading to sepsis.”
Amanda goes on to say that she has attempted many different DIY dry suits for her son. First, she tried to cover Noah’s chest in multiple layers of plastic wrap with lots of medical plastic dressing plus moisture indicator paper inside to warn her in case the whole setup got wet. With this arrangement, Noah was able to enjoy the water for “a little over a minute” before his dressing became saturated. Not satisfied, Amanda didn’t stop there. When the first attempt failed, she tried to put Noah in a waterproof rain jacket with the wrists and waists sealed as much as possible. While this method has yielded limited success (he was able to play for 20-30 minutes before his dressing got wet), Amanda came to the realization that she needed to obtain a dry suit for Noah so he can enjoy extended periods of time in the place he loves best—the water.
“My 6-year old daughter begs me to take her and Noah to swimming pools or to let them play in the rain together, but I continuously have to explain to her why he can’t go into the water…Noah is unable to enjoy things like food, but he LOVES water. I would love to make it possible for him to enjoy longer periods of time in the water, so my request is…do you make custom dry suits for extra small children?”
Yes we do, Amanda.
USIA CEO Lana Johns knew exactly what to do. We’ve made custom dry suits for little guys like Noah, and we were more than happy to fulfill Amanda’s wish. “We would be glad to make Noah’s life a little more fun and easier,” Lana said. “We can definitely do that.”
Flash forward a couple of months and we find the Ervin family in Florida. Noah has his new dry suit and he and his sister can frolic in the surf with impunity. We can’t say in words how much joy this brings us, being able to help Noah even in a small way.