At USIA, while we believe wholeheartedly in a strong work ethic, we also understand just how vital it is to a child’s development to play in the water. Probably some of your fondest memories of childhood revolve around a river, lake or the ocean. We, all of us, simply have a need to splash and swim and whatever else tickles our aquatic fancies (SCUBA, anyone?). We should know. We build the equipment that enables many people to enjoy the water where they otherwise could not. Usually we make dive suits for cold water divers. However, there are others, children with special needs, who we often try our best to help get them off of terra firma. In this edition of USIA Angels, we meet Brandon Chorney, a very courageous 4-year-old who has been dealt a tough hand in life. Here are the words of Brandon’s father, Daniel.
Dear Lana and USIA-
I hope this letter finds you well! I first wanted to sincerely apologize for this note being way overdue. In February, you provided my 4 year old son, Brandon, with a dry suit to go over the Mehta cast he wears for Scoliosis. Brandon also has a rare genetic syndrome called Prader Willi Syndrome in addition to having moderately severe Scoliosis. He has been getting Mehta casts every 3-4 months since he was 2.5 years old and this has been a very difficult process. One of the hardest aspects of his casting is not allowing him to enjoy water. What kid doesn’t grow up remembering how much fun they had in baths, swimming pools and playing in the ocean?!?! It has especially been difficult when we travel to warm places or head to the beach on weekends with our extended family.
When I found your company online and called to ask about your dry suits, you not have been more kind and understanding. I was brought to tears when you told me about the “USIA Angels” which provided Brandon with a FREE dry suit! In February, we travelled to Florida with our family and Brandon was able to enjoy all the fun water activities that every kid should! He went swimming in the pool and was thrilled to play in the ocean. Over this past Memorial Day weekend, we were also able to use the dry suit at the Jersey Shore with family and Brandon LOVED running up and down the beach and being pulled through the waves on a boogie board with his cousin.
We seriously cannot thank you enough for your generosity!!! You have helped us regain enjoyment in these simply activities and we are forever grateful. We need more generous organization like your that make lives easier for children with special needs and their families.
We’ve attached some pictures so you can see Brandon enjoying his dry suit!
With sincere gratitude,
The Chorney Family
(Samantha, Dan, Brandon and Leah)
You are very welcome, Daniel and Brandon. While USIA is a small company, we have big hopes for Brandon and all of our USIA Angels.